A long way to go? - Megan's OT appointment today

coasterqueen wrote: Uh. Megan had her pedi OT appointment this morning and I mentioned to the therapist that we are only scheduled through February and asked where do we go from there. I was assuming she would say Megan has done well, all she can do, and she'll be done then. Instead I got "Megan has a long way to go yet, Karen" She did say that Megan's made huge changes, good changes, but just hearing that we still have a long way to go. We discussed several options for the course of action, so I'll talk it over with Dh and see what we think is best for her.

Kaitlin'smom replied: thats hard to hear did she give you more specifis as to what she really needs work on or just overall?

coasterqueen replied:
Not really specifics. She said that normally parents don't work hard with their children to improve and she said that DH and I are doing that so she feels very confident in giving us more skills of our own to do this at home, maybe take a break from actual in hospital OT for a month, give her a call, and then go from there OR we can just stick with weekly OT. So I'll see what Dh says. I know this weekly OT is taking a toll on both Dh and I with the time it's at during the day, but we can't change the time -- it's the only time slot available (7:30 am).

boyohboyohboy replied: Karen, since you said you thought she was going to be discharged, and not need the services any longer, and were surprised when she said she needed to cont. do you think she really does?
i ask only because I felt our last therapist kept us on a lot longer then we needed to be, and in the end we really didnt bennefit from the last month or so.
did she give you specific areas she felt she needed more help with, and some ideas on what they would suggest?
I am sorry you are still dealing with it, i know how diligent you have been with her care.

coasterqueen replied: I probably should have asked for more specifics. I was so shocked, I guess, that I didn't think about it. She mentioned there were other things that she wanted to do with Megan to get more "body and space awareness" that she hasnt' been able to do yet because Megan has not been ready to move on.

I see a lot of struggles going on inside of Megan and I fear how she's going to handle these struggles in school, so one side of me thinks we should stick with it at least until she starts school, and another part of me just isn't sure.

lisar replied: I dont know what to say. You are the parents and from the way it sounds you are doing everything you can. I know you will make the right decision.

amynicole21 replied: I'm sorry, honey. I'm glad you feel she's improved so much though! That's really exciting news.

coasterqueen replied:
It really is, and I need to focus on the positives. She really has made remarkable positive strides since starting OT. She's not afraid of lots of things that she was afraid of and super obessed over. She's opening up to more strangers/kids whereas before she kept completely to herself. She's having less meltdowns and can handle her surroundings a bit better than before. Etc. Etc. I know, like I said, she's got struggles and I fear they could worsen in school, but I do need to focus on the positives when things are bothering me. Dh and I have been sharing her "successes" when we notice them, which is nice.

Kaitlin'smom replied: deffianlty stay positive. its helps and I am glas she is doing so well. she is an amazing little girl and I loved metting her.

A&A'smommy replied: OH Karen I'm sorry!!!! But YAY for the progress she has made so far!!!

My2Beauties replied: I don't know much about OT but it sounds like it has done wonders for Megan. Kudos to you and Ryan for being such wonderful parents. KUP!

mysweetpeasWil&Wes replied:
I'm sorry you got some bad news Karen, but looks like she has come a long way, which you all should be very proud of. You and Ryan are amazing to get up so early and take her to OT sessions. You guys are doing a great job! Hang in there.