Parenting Club - Parenting Advice, Parenting Message Boards, Baby Message Boards, Pregnancy Message Boards, TTC Messge Boards
Shop for Baby Items | Parenting & Family Blogs

I wanted to share something with you all


Cary Lynn wrote: My youngest Daugther Angel, was born with a rare condition. It is called Ectrodactyly. They also call it cleft hands and feet. She was born Missing Fingers and toes. She has 3 fingers total on each had and 4 toes total. 2 toes per foot.
We have no reason for this happening, but she is such an amazing little person.
Here is some info on it.

Ectrodactyly: The congenital absence of all or part of one or more fingers or toes.

The term ectrodactyly has been applied to a variety of malformations of the fingers or toes. It is probably best reserved for:

transverse terminal aphalangia (absence of the last bone in the finger or toe),
adactylia (total absence of a finger or toes), or
acheiria (total absence of one or both hands).
Cases of ectrodactyly defined in this way are usually sporadic (with no family history of this malformation). As a rule, one hand is involved and the feet are not affected. Congenital constriction rings ("amniotic bands") are sometimes associated with the malformation.

The hereditary condition called split-hand/split-foot malformation and sometimes called lobster-claw deformity is also termed ectrodactyly, as does another hereditary disorder called the EEC syndrome. (EEC stands for ectrodactyly, ectodermal dysplasia , and facial cleft.)


mammag replied: Thanks for sharing. I had never heard of this before. I'm sure she is an amazing girl! Does it cause her a lot of trouble with doing things or has she gotten used to it and work around it? Did you know she was going to have this before she was born?

Cary Lynn replied: She is very good with her hands and Feet. She is like any child, but just missing fingers and toes.
We found out when I was 20 weeks pregnant at a routine U/S

Maddie&EthansMom replied: I bet she is an amazing person...just like her mommy. wub.gif I'm so glad you shared. I have heard of this and although it is rare....I've actually seen this.

mommy2owen replied: That is interesting. I have never heard of that before!

Josie83 replied: Thanks so much for sharing! Angel is a beautiful, special little girl! wub.gif xx

Cary Lynn replied: Thanks biggrin.gif

Kaitlin'smom replied: thanks for sharing, I went to school with a boy who had this never knew what it was called. Did it scare you when you found out?

gr33n3y3z replied: Thank you for sharing your story
It's amazing how they figure out ways around a little road blocks.
And we are so happy for them one more mile stone achieved.

kimberley replied: thank you for sharing her story. she is a lucky girl to have such a caring and wonderful mom wub.gif would you post a pic of your little Angel? smile.gif

TANNER'S MOM replied: Thank you for telling us and sharing. I am a true believer that every child is perfect. I think you are a wonderful mother and I think you must be a special Mom for God to send you such a blessing. A child he knew you would open your heart too.

Thanks for educating me!

GavinsMommy replied: Thanks for sharing. An old friend's nephew had something similar... I am sure she is just as capable as other children and even more amazing wub.gif

Boys r us replied: Thank you for sharing that with us! I have never heard of this before, at least not by name. I think she's a lucky little girl to have such a wondeful and caring mom!

PascosGirl replied: Like everyone else said, thanks for sharing your story! I know you feel blessed to have her!

Cary Lynn replied:
It didn't scare me, just worried me. When she was born and We saw for ourseleves, it was a little bit of a shock, but she had no mental prblems or any kind of delays, so that made me feel relieved.

Kaitlin'smom replied:
I bet she is an amazing child

A&A'smommy replied: Wow thank you for sharing!!! She sounds like an amazing person just like her mommy!!! wub.gif

Cary Lynn replied:
Thanks Jess


CommunityNewsResources | Entertainment | Link To Us |Terms of Use | Privacy PolicyAdvertising
©2025 Parenting Club.com All Rights Reserved