It's Not Graft-Versus Host Desease
Kirstenmumof3 wrote: I know that I'm supposed to be happy about this. I know that this is a good thing. But it's not, because I don't trust or believe the doctors right now. They are starting Spencer on a treatment for his ulcer it will be a 3 day infussion and they will need to start an IV. There really isn't much of a plan. We may be able to be transfered to the hospital in Thunder Bay, but I'm not holding out much hope. I actually don't have any hope. It's just one more promise that they can't make.
Forgot to mention that the treatment for his shingles is 3 weeks.
amynicole21 replied:  I hope you can get some real results and answers soon.
1lilpeanut2love replied:
 to the above!!!
BAC'sMom replied:
Sarah&Mackenzie replied:
Kaitlin'smom replied: I just dont know what to say. I hope he heals quickly and can be transferred. You so need to go home.
jcc64 replied: Kirstin-
I am so sorry you are going through all of this. I know how painful shingles can be- my dh had it as a college student, and he was bedridden for several weeks.
There is a little boy in our community who also has/had leukemia. The worst of it occured when he was about the same age as Spencer- he is now 13, just made his bar mitzvah, and is living a very normal, typical life. Just a few years ago, that seemed utterly impossible. Reading your post today reminded me that he had ulcer/stomach issues related to his treatment as well. Would you like me to contact the mother on Spencer's behalf- or ask her if it's ok if you email her with any questions you might have?
Hang in there, hon.
~Roo'sMama~ replied:
boyohboyohboy replied: Does the hosp have a social worker or a patient adcovate that might be able to help you communicate your concerns to the dr's? someone else to be on your side? How about anyone nurse that you might be able to get to help you?
JAYMESMOM replied: You are a very strong woman even though you may not think so right now. Hopefully he will heal quicker than usual and you can get home to your family.
gr33n3y3z replied: I think its time for Spencer to be transfered home only if your hospital can deal with his issues.
I wish they could tell you something
A&A'smommy replied: goodness poor baby!!! I'm glad its not that other thing, I hope he heals quickly and can be sent home soon!!
ashtonsmama replied:
AMEN--this has gone on long enough. I'm glad to hear it's not GVH, but sorry about the treatment.
C&K*s Mommie replied: 
AlexsPajamaMama replied:
b&bsmom replied: All I can do is give you more hugs and prayers. I know you are at the end of your rope but hand in there. This should all get better real soon.
Kirstenmumof3 replied: Thanks everyone! I went and saw a psychiatrist today and she has strongly recommended that I go to the emergency department and have msyelf admitted. She has left that decission up to me and has trust that I will make the right decission. I don't think I need to go into any details, I think most of you know about my mental illness. She is going to speak to my DH and see if he can come to Toronto, he wouldn't be able to make it here until Saturday. My inlaws are going on a gambling trip for 3 days. Anyway I don't know what to do and I'm scared. 
ashtonsmama replied:
Kirsten--you've been through SO MUCH with Spencer these past years and months, you deserve to feel better and be completely healthy and well for yourself, and for the kids.
ITA with your psychiatrist...I think it would really be the best for you and help you take better care of Spencer and your girls...honestly.
Even if it just gives you a break--you need it hun. It's been such a long haul...it's time to care of YOU.
Please take her advice, it'll all work out sweetie, and I'll be praying alot for you and the family, hope that DH can come up really fast and you can get into a hospital. It would be for the best I think. Any other people that can be with Spencer? Any friends, relatives, anyone? Does the hospital need someone there with him for medical decisions and such?
KUP.
DansMom replied:
kimberley replied: i agree with ashton's mom. you need to take care of you right now. i have been really worried about you and this sounds like the right thing to do. what you have gone through for almost 6months is more than anyone could or should have to bear. you need a rest and dh needs to step up NOW!
i admire your courage to be Spencer's rock all this time and to recognize you need some time to look after yourself now. i will be praying for you both and the offer always stands, i am a call away if you need anything.
mom21kid2dogs replied: Geeze! It's been some wild ride! Keeping my fingers crossed he can be transferrred to home SOON!!
holley79 replied: Kirsten. I hope and pray that he can be moved to Thunder bay. How far is that from home? is the staff treating you any better?
Mom2Boyz replied:
|
