Long and Frustrating Day

Kirstenmumof3 wrote: I'm so tired right now! I've been up since 7:30, then we headed to the hospital for 9:00 and sat around waiting for the doctors to decide what they were going to do with Spencer. They think he has Graft-Versus Host disease in the stomach, but that can't determine this unless they do a scope of his stomach. He has also lost about a kilogram since last Wednesday. The IV medication that he was supposed to have today, they didn't have in the hospital. Then I went down to get to get Spencers prescriptions from the Pharmacy and they had to call Spencers Doctor because the dosage had changed. I spoke with the Gastrointestinal Team and they have decided to do a scope and biopsy of Spencers stomach. But they think it would be better if he was an in-patient, this way the procedure could get done in a matter of days. But if he is an out-patient it could take weeks. Anyway Spencers doctor was not willing to admit him so they've told me that it may be done this Friday, but for sure next Friday. I can't tell you how exhausted and frustrated I am!

grapfruit replied: Vibes for Strength

mummy2girls replied: oh Kirsten! Im not sure what to say! Sometimes if nto always you just want to grab the doctors by the neck and strangle! They have no clue sometimes! I am sending HUGE prayers his way. ((((HUGS))))

DansMom replied:

MommyToAshley replied: Oh no Kirsten!!! I thought he was doing better and getting ready to go home. I didn't realize there was anything else going on... poor guy. This all has to be so frustrating. Hang in there! Many p&pt's!

holley79 replied: Strength vibes for both you and Spencer.

kimberley replied: it must be frustrating but just try to take things one step at a time. i know you are anxious to go home but each precaution they take now could mean not going back in a month, kwim? i will keep you both in my prayers that you are home soon.

cameragirl21 replied: poor Spencer, he must be so tired of all this! Strength vibes coming your way.

Kirstenmumof3 replied: Thanks everyone! Spencers nurse called us and the procedure has been scheduled for this Friday at 10:00. Let's keep our fingers crossed that he doesn't get bumped! If all goes well we will get results by Wednesday and have a better plan as to when we get to go home!

CantWait replied: I'd be fustrated just at the fact that knowing his illness they are prolonging it just because he's an out-patient. WOW sorry Kirsten, I can imagine how exhausted you are putting up with this. I'm so sorry.

A&A'smommy replied: Poor guy I hope that they get whatever problem it may fixed quickly so he can go home!!

HuskerMom replied:

redplaydoh replied:

If he has this, what does it mean for him? Is it something that can be treated? What will they do?

Kirstenmumof3 replied:
Graft-Versus-Host Disease means that Claudia's cells are starting to attack Spencer's cells. They want a little bit of this to happen, because this means the transplant is working. But they want to catch it before it becomes severe. Right now if it is a mild case he will be put on a mild dose of oral steroids, depending on how well he responds will determine how long he will need to be on the steroids.