Not Good

Kirstenmumof3 wrote: I'm sorry to report such bad news. Spencer had to have the IV's started before he was brought down to the IGT unit and they tried twice in his left hand and couldn't get one started. They eventually got one started in his right hand, but it faild and they just took it out. So now they have had to call the lab to come and put another one back in, because he needs 2. They took Spencer down to IGT around 9:30 this morning and the transport guy was such a prick! Spencer could barely walk, barely stand and he was telling him to hurry and get on the strecher before he lost his spot, then the transport guy left and Spencer's nurse was going to have to take him down. But he showed up again. When we got down to IGT to have his line removed, they almost canceled the procedure because he was on morphine and his oxygen levels were really low. Once the Doctor saw the Central Line, they really had no choice, the infection had reached the Line. They couldn't put him under general anesthetic and because of his oxygen levels so they had to sedate him instead. But they couldn't really give him all that much sedation drugs so he was still pretty lucid for the procedure. While Spencer was still in IGT the doctor called down and asked them to start phemoral line, so at least he has one IV working but it is in the bend of his elbow, so he can't to much. He now has a fever of 39.9 C and we had to really struggle to get him to take tylenol. He is in so much pain and they've decreased his morphine (which doesn't make sense to me, he's in such pain). I don't know what to do to make him comfortable. I just hope that this infection passes quickly. If they can't bring the fever down, then he will be transferred to the ICU. The doctor has ordered a CT scan or an MRI (he said whatever becomes available first, he doesn't care). He has sores in his intestinal tract and they are causing him so much pain.

luvbug00 replied: first off shame to the transpot man. secound I'm so sorry that things are a little rough right now and I'm praying so hard for Spencer.

My3LilMonkeys replied:

kayla's mama replied: ITA..shame on that transport guy

I'm so sorry that its not going well He is such a trooper I'm sure it will get better. Still in my prayers. I told my family about your son and they are praying for him also.

kimberley replied: poor little guy. he is so strong to endure all this. my continued prayers your way.

~Roo'sMama~ replied: I'm sorry it's not going well. I'm praying that it will get better soon.

CosmetologyMommy replied: I am so sorry that you are going through this. I know words cannot take it away but you are in all of our prayers. I hope spencer is able to relax and rest a little.

mom21kid2dogs replied: Poor guy!!
Here are lots of ((((FIGHT INFECTION)))) vibes for Spencer and lots of extra for you!

jacobsmama replied: You are such a brave woman to endure everything that you are and Spencer wow he is just words can't even express He is a strong boy and he learns by example.

Prayers to all of you. Just know that he has all of us praying for him!

Kristi

PrairieMom replied:

A&A'smommy replied: I'm SO sorry sweetie!!! OMG I hope he heals quickly poor thing to have to go through so much pain!!!

3xsthefun replied: I'm so sorry. Shame to that transport guy, that was very rude!

I really hope things get better soon!!

kit_kats_mom replied: I don't even know what to say Kristin. I'm keeping your family in my thoughts daily. I keep hoping to hear good news and I'm sure it will come in time.
Until then, big giant hugs. You seem to be coping really well. I was only in the hospital for two days with Lauren when she was sick and I honestly felt like I was losing my mind. It's such a deperessing place. I'm proud of you. Good job mom.

mckayleesmom replied: Hugs and prayers to you and Spencer. I hope his infection clears up really soon.

Boys r us replied: Bless his heart!! He is a very strong little man!! I hope the sun starts shining on you guys soon!!

C&K*s Mommie replied: I think about you & your family daily, I wanted to send more hugs and send more prayers up for you & for Spencer.


~~~~~~~
Grrrrss.... to that transport guy having zero consideration Spencer.

amynicole21 replied: Oh my god. Kirsten, I'm so sorry for him! I hope he can fight this off quickly!

Edward's Mommy replied: You are so amazingly strong. I don't know if I could be as strong for my child as you are for Spencer. I wish I had the right words to say to make you feel better and to tell you that everything is going to be okay. I long to tell you that everything is going to be okay, but I'm afraid if I say it, that I will be hurting you more if it isn't. I still ask that God cast a loving and protective hand over you and your family and most especially Spencer. I can't imagine the pain you are feeling, watching your child suffer through this and there's nothing you can do to make it stop. I continue to pray for a positive outcome for Spencer and for you to continue to be as strong as you have been!

jcc64 replied: I know one of these days things are gonna turn for you guys, Kirstin. Ita with Cary about hospitals, - just being in one as a visitor can really suck all of the positive energy right out of you. I know it feels like there isn't much to feel optimistic about, but there's always hope that tomorrow will be a little easier than today. Big big hugs- you're on my mind all the time.

Kirstenmumof3 replied: I can't thank you all enough for your continued support! Spencer is an amazingly strong little boy and I am so proud of him. The pain managment doctors are coming to see us tonight and hopefully we will be better able to manage the pain that he is in. His fever finally broke, for now and he is sleeping. Now I'm tired and I have to wait for the doctor before I can leave.

~~*Missi*~~ replied: wow, that transport guy was a Pri---well you know!
You and your son are the most amazingly strong people I have ever come in contact with. For him to endure so much at this age, and you to have tobe there and stay strong and positive for him. You guys are amazing.
I really hope that he gets better soon. My father just had a blood infection from the stint and was in ICU for awhile and then came home with weeks of IV antibotics... Its been a month or more now and they are still testing him to make sure its gone.

Good luck I am sending positive healing vibes!!!!!!!
YOU both are in my thoughts and prayers.

booey2 replied: Hugs to you, you are one strong mom. Take of both Spencer and yourself.

coasterqueen replied:

mummy2girls replied: (((HUGS))) I am so sorry kirsten! Spencer is such a tough guy to got hrough all fo this and KUDOS to you mom! You are so amazingly strong! Im still praying for youa ll!!!!!!!!!!!!!!!!!!!!

CAMSMOM1 replied: Kirstin
Just know that this too shall pass. Everyday Spencer is that much closer to being in full remission. And soon you, Spencer & your family will all be together in your home. And this will just be a distant memory. Spencer is going to fight this fight, because he has a Mother who believes in him and keeps the faith. I'm so glad his fever broke.

Ann

MyBrownEyedBoy replied: Thank goodness for small favors and pain management specialists. They probably took him off the morphine because of his oxygen levels being low. There are better pain meds, trust me. I hope they can find one that will help Spencer, FAST. Glad to hear the fever broke, those are scary. And I am so glad you can come to us when you need a pick me up. I'll keep praying for you and Spencer both.

redchief replied: Kirsten, there isn't much I can say that hasn't already been said. We're praying for you all and will continue to keep you at the forefront of our thoughts and prayers.

One thing I learned about hospitals was this... Don't be afraid of being a pain in the butt. That's YOUR child, and even though the doctors and nurses and technicians may deal with hundreds of patients in a week, your son is NOT just another number. If you have questions about his meds or treatment, you ask and don't let them blow you off. You have a right to know and understand everything that is going on with Spencer, and so does he. I've found that often docs; especially docs, will give a generic answer to patients' or parents' questions (Like, "Because that's what we need to do."). I learned early that wasn't good enough for me. I learned to ask why until I was satisfied. Sometimes you might not like yourself for being so pushy, but, frankly, I don't like it when medical people stop treating us like human beings, so fair's fair.

As far as the reduction in morphine goes, it's likely that they've reduced it so that he doesn't start becoming addicted to it. Further, the body's neural system, as with other opiates, starts to build resistance to it. That doesn't mean Spencer has to be in such pain, though. There are many other medicines and things that can be used to control pain. Keep pushing them until your son is comfortable. I know I probably didn't need to tell you all of this, but I also know that when we were dealing with Erin's vision problems, we weren't sure what it was okay for us to do or ask and what wasn't. That's your little boy, and you can do anything and everything you think you have to as a mom until you're satisfied he's getting the best care that can be delivered.

Love you guys. Hang tough!

MyBrownEyedBoy replied:
Well said, Ed, as usual. I wish I could clip this out and anonymously send it to all the staff at the hospital. We are all guilty of treating a patient like a room number or a disease. (Although I get really mad when a nurse says to me on the phone, "Oh, you mean the breast cancer in room 409?" I always reply, "No, I mean Mrs. Smith) Okay, off topic.
Back on, Kirsten, Ed's right. Do not be afraid to ask questions until you get an answer that makes sense. And I would seriously consider talking to the hospital social worker about the rude treatment you recieved. The hospital needs to know so they can improve.

redchief replied:
Permission granted Kelly. You don't even have to worry about anonymous. My name is Ed Dean, and I'm an EMT in NJ with 25 years in "the business."

I work in the system too, and sometimes it sickens me how quickly people's humanity is stripped. It's one thing to not get too emotionally involved. It's quite another to remove all humanity to protect oneself from that involvement.

More prayers out to Spencer and Kirsten.

mummy2girls replied:
i agree with ed as well. With Jordan i had to be pushy and that is so no like my personality! Im uslayy whatever attitude but because it concerns my child i was a pain... Spencer is so worth all the pain inthe butt questions...

Hang in there hun!

NEWMOM05 replied: Poor Spencer. It makes me sad how much pain you all are going through. I hope it gets better soon.

MamaJAM replied:

Sarah&Mackenzie replied: I am so sorry he is having such a rough time. I am continuing to pray for the both of you and you are always in my thoughts.

DansMom replied: I hope things turn around very soon. What a trooper Spencer has been through all of this, and what a strong mom you've been.

lesliesmom replied: Kristen, my continued prayers for Spencer, you and your entire family. You and Spencer are both amazingly strong and determined, that is a great combination to fight this.

Maddie&EthansMom replied:

I can't pray enough for you guys. You are never far from my thoughts. I love you...hang in there sweetie.

MM'sMama replied: Lots and lots of P&PTs!!!

Makenzi'sMom replied: OMG I am so sorry, these post break my heart and to be honest right now I am coming here to check on you guys! I will pray for you all and please keep us posted!

jem0622 replied: I will say many many prayers for Spencer. I am so sorry that it has been difficult with everything they've had to do and he is having additional issues. Lots of strength to you. Thanks for checking in to tell us the latest. I pray that he will get through these needed treatments and continue to gain strength and health.

fashionmumofboys replied: Poor Spencer, what a tough little guy to endure all that pain. I hope this passes soon for everyone.

Sending lots of prayers and thoughts your way.

My2Beauties replied: I am just now seeing this post Kirsten. Please know that we are praying for Spencer everyday and Ed said it best, be a pain in the butt if you have to, you have the right to. I'm so sorry that he isn't getting treated nicely, that is awful. I'm so happy that his fever has broken. I hope that brighter days are ahead and soon for you guys Kirsten.