Will's heart dr. appointment

my2monkeyboys wrote: I don't know if any of you remember, but last year we had a murmur checked out in Will, just to make sure. It was ok, but they found a small extra vein coming from his heart. Well, they wanted to wait a year and see if it would go away on it's own (the dr. said that he's only had 1 that didn't). He was supposed to go last Wednesday, but they called and ended up re scheduling it until the 22nd of December.
I have to say I'm a bit irritated because I'm nervous as hell about it, though I keep reassuring Will that it will be fine and no problems of course. And now that we have to wait another month I feel a bit on edge. Why do they do this??? Don't they know that it's hard enough to wait a YEAR to see if your child is ok, and then they push it back even further, just when you get your nerves readied to find out???

I know the odds are in his favor that is will have disappeared on it's own, but the fact that the dr. wants to make sure is just scary.... what if it didn't? What then - surgery? More waiting? I was just SO ready for this to be over, now we get to wait to find out 3 days before Christmas. I don't know if my nerves can take it.
Thanks for letting me vent.

MommyToAshley replied: ((hugs)) I would be just like you.. you prepare yourself and it takes a lot to get ready, and then you have to wait longer. The waiting and anticipation is the hardest part and then to extend that is just irritating and annoying.

It's good that most disappear, so you're right, the odds are in his favor and it's probably gone by now. I'm sorry you have to wait longer to find out though. You're in my thoughts and prayers.

MyBrownEyedBoy replied: I go through the waiting game every year with Logan. It's never easy, it doesn't get easier. I know that eventually Logan will need another surgery, it's just a matter of time, I'm constantly thinking, "Is this the year?" The odds for Will here are great, try to keep that in mind, and I know 3 days before Christmas is lousy timing. I'll keep you guys in my thoughts.

boyohboyohboy replied: Oh Steph, You are all in my prayers. I know its hard to wait.
Please keep us updated on how it goes.

my2monkeyboys replied: Thanks for the thoughts and prayers ladies. I didn't mean to make you feel like you need to think of us or anything.... I just needed to vent. Thank you so much, though, for the support. This is one of the things I so love about this place.

~Roo'sMama~ replied: Aww Rae I'm sorry! That must be so frustrating. Did they give you a reason for postponing it? That just doesn't seem right when you've had the appointment for so long!

flirtycuddle replied: My daughter was diagnosed with a thickened valve and an ASD at 3 months old and I was told we'd have to keep an eye on it every 6 months. Most times stuff like that clears but if it didn't she would need surgery to repair the issues. She is now 5 yrs old and just had another check up only to be told there is no murmer so everything has cleared itself up. The waiting every 6 months-1yr can be very hard and annoying specially when they change appointments around. It took Jackie 5yrs to have hers correct itself and they were not going to consider surgery till she was 7 if it didn't fix. When you do finally get into the doctor I would just ask point blank how long are you going to give this to fix itself and if it doesn't what will happen just for an ease of mind. The more questions you ask the more confident you will be with everything going on.

coasterqueen replied:

boyohboyohboy replied:
steph, you didnt make us feel like we HAD to keep you in our thoughts and prayers..we want too!
You are part of your PC family! So is Will!

MommyToAshley replied:
She said it best for me too.

luvbug00 replied: How stressful this must be for you. we are here if ya need us

coasterqueen replied:

lisar replied: (((HUGS)))

I know the feeling. Raygen has to have an ECO done every year to see if the kawasaki disease effected her heart in any way. She will have to do this the rest of her life. We know the chances are slim of somthing showing up, but its still the thought. So I know how you feel. I hate the waiting game also